Presentation by: Karen Shore, Ph.D.
The National Coalition Summer Conference
June 22, 2001 New York City
We have a number of folks who are here because they are mental health
patients or family members. We also have a number of mental health
professionals. Policy-makers often don't fully trust the professionals
because they think that the categories of patients and professionals are two
distinct groups. They are not. Many mental health practitioners, myself
included, are advocating so vehemently because they know emotional pain from
both sides of the treatment room and they know what sufficient, high-quality
mental health care is from their own experience as patients.
WHY WE NEED TO ELIMINATE THE MANAGED CARE (MC) INDUSTRY AND ITS CONTROL OVER
MENTAL HEALTH CARE.
Due to under-treatment, the MC industry is responsible for keeping people in
pain whom we could heal, and they are responsible for many, many unnecessary
suicides and deaths.
MC is responsible for demoralizing a nation of clinicians, forcing them to
work in ways they find unethical or abhorrent and by reducing their incomes
to fees that were decent in about 1980, damaging them personally and making
them too poor to fight the industry effectively. This is a standard "starve
the enemy" tactic.
MC is destroying professional education because now almost all graduate
programs and residencies teach only short-term, symptom-focused methods of
therapy, feeling they must "train students for the marketplace" rather than
for the complex people with complex problems who will seek their help.
HERE IS WHAT WE NEED IN OUR MENTAL HEALTH SYSTEM:
We must provide the seriously mentally ill with high quality mental health
care. People with serious mental illnesses want to live productive,
satisfying lives. They deserve treatment that can help them do that. The
mentally ill should be living in their family's homes, their own apartments,
or in group homes, not in the streets, the woods, or in prison. Treatment
should be done in offices, clinics, and hospitals, and not left to the prison
system!
We must also provide high quality mental health care for people with
emotional problems who do not have a serious mental illness. These folks are
disparagingly called the "worried well" to make people think that they need
little treatment. Untreated and under-treated emotional problems lead to
medical over-utilization, school problems, prejudice, anger, and hatred; to
physical, emotional, verbal, and sexual abuse; to bullying and to kids who
bring weapons to school. They lead to teenage pregnancy, substance abuse,
road rage, overeating, smoking, anorexia and bulimia; to problem employees,
absenteeism, on-the-job accidents, lowered productivity, and sexual
harassment. They lead to violent crime, vandalism, theft and robbery, and to
white collar crimes like cheating and tax evasion and fraud. They lead to
poor choices of mates and to messy divorces that devastate children. Plain
and simple, people do not hurt other people when they are emotionally healthy.
You see, almost all our nation's social problems are largely mental health
problems. We would save vast amounts of money in so many other areas and we
would have safe and caring communities if we would just put what was needed
into high quality mental health care.
HOW WE NEED TO SET UP OUR MENTAL HEALTH CARE SYSTEM.
- We need to consider that spending 10% or 14% of the GDP on health care
may be a good thing for our people, and that spending 10-20% of the health
care dollar on mental health would greatly reduce spending on medical care
and ameliorate most of our social problems.
- We must end all employer involvement in health care. Employers now have
too much control over patients because they pay the premiums and choose the
health plans, and with managed care, employers are defining and making
decisions about what mental health care should be about, and this is absurd
and unacceptable.
- We must remove profit-making corporations from health care. Like
employers, insurance company executives are also defining mental health
treatment and making decisions that patients and their clinicians should make.
- We must replace the MC industry. Regulation will never be enough to make
MC ok because MC is run by bullies. You cannot just regulate bullies and
expect them to behave kindly. They will take advantage of the mental health
patient in any way possible. Bullies must be removed from power.
- In any plan, we must preserve the patient's right to the Three
Fundamental Freedoms of choice, privacy, and control.
- Choice means no lists of "preferred providers" that manipulate and coerce
patients and clinicians. We must abide by the International Code of Ethics
which states that practitioners shall not accept conditions of service that
do not ensure their professional independence. Clinicians must be free of
coercion, fear, and economic intimidation to be able to do what is best for
their patients.
- While confidentiality of records is a must, we must also protect personal
privacy, which is a different concept. Personal privacy requires that
insurers get no personal information beyond a diagnosis. It means no
pre-authorization and no case reviews unless fraud or abuse is suspected.
Men and women have told me that the pre-authorization utilization review
process, where information about their particular problems and symptoms must
be divulged to the insurer, makes them feel like they are being mentally
raped. This is damaging to patients and it forces clinicians to go against
their own ethics and betray their patients' sense of privacy.
And my fellow Democrats, please take note. Every Single Payer proposal I have seen uses
this same kind of utilization review. I myself cannot tolerate these
procedures as a patient and would not be able to get treatment under these
single payer proposals. If it were illegal to pay out-of-pocket or I
couldn't afford to, I could not get treatment at all. As a therapist, I
could not ethically participate in a single payer plan that uses
pre-authorization and utilization review, and I would likely have to leave
the field or work illegally. Planners must understand how harmful intrusion
into the contents of therapy can be.
- Patients must control decision-making. This means no managed care. It
also means that all forms of generally accepted treatment be reimbursable,
including psychodynamic therapy and psychoanalysis. I have seen single payer
plans that only reimburse cognitive-behavioral therapy. All generally
accepted forms of therapy need to be available and need to flourish for the
health of our people.
- There should be no for-profit insurers. A single payer plan might
achieve this, though there are significant problems with Medicare and single
payer proposals. Another idea is to have a system of consumer-run
not-for-profit association plans. Each plan would have only one lifetime
limit for medical and mental health combined. All plans would have open
enrollment with no limits on pre-existing conditions, allowing people who use
up their lifetime limit with one association plan to go to another.
- If patients and clinicians are to retain decision-making power and
privacy, then we will need cost-control mechanisms that are internal to the
patient, balancing freedom with responsibility for costs. For mental health
office visits, we can achieve cost control and retain freedom by having a
fixed dollar insurer reimbursement for each visit, with a sliding scale
co-pay, negotiated by the patient and clinician.
Government could also kick in part of a co-pay for the poor, the disabled, and those with serious mental illness. Regional boards could list reasonable fees ranges to guide the
patient and prevent price gouging. If we don't encourage patients to be cost
conscious, someone else will make their decisions for them. I fear that
parity laws might prevent experimentation with new ideas.
- A system of fixed fees as in managed care, Medicare, and Single Payer
proposals, is detrimental to quality care. Why? Because in our field, some
people end training with their masters, doctorates, and MDs. Others feel
that their degree is only the beginning, and they may spend 2, 5, 10 years or
more and up to $80-100,000 beyond their degrees to take advanced training.
Patients need professionals to get advanced training and professionals need
to be able to afford it. We need a system where clinicians can base their
fees on location, talent, training, and experience that also keeps treatment
affordable to all.
- There is an unfortunate side effect of parity legislation that needs to
be corrected: As we predicted, data is showing that people are getting less
treatment with parity than before parity because the MC industry discontinued
all its non-parity but unmanaged benefits and put all outpatient treatment,
including out-of-network benefits under managed care.
That means short-term therapy and intrusion into personal privacy for everyone. Parity laws must
assure that people can choose an unmanaged non-parity alternative that may be
limited in reimbursement, but allows them to remain in treatment as long as
they need and to protect their sense of personal privacy. Also, with this
option, clinicians who find MC unethical won't have to work in a way they
believe is unethical and harmful.
- No insurance plan should ever prohibit any patient from paying completely
out-of-pocket if he or she wants absolute privacy, and it should never be
illegal for a practitioner to treat a person who is in pain and wants privacy!
CONCLUSION
Ethicist Joan Callahan said that finding the most economic solution to a
problem may not be to find a morally permissible solution to that problem. MC
is not a morally permissible solution, and neither is any plan that deprives
patients of choice, privacy, and control over treatment decisions.
The goal of our health plan should be to ensure that the United States is a
medically and mentally healthy nation capable of creating a non-violent,
caring, compassionate society. We all need safe, supportive, and caring
places in which to live, grow, learn, work, and play. We should strive to
give every child a mentally healthy and mature parent; every employer
mentally health employees; every employee a mentally health and mature
employer; and every community honest, concerned, involved and caring citizens.
Because almost all our social problems are really mental health problems,
there is no better investment in America than accessible, high quality mental
health care for all.
Presentation by: Karen Shore, Ph.D.
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